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Published: 2024-07-24
Abstract Views: 251
DOI: https://doi.org/10.52163/yhc.v64i4.711
Issue
Vol. 64 No. CD 5 -Nghiên cứu khoa học
Section
Articles
How to Cite
Dinh, N. T. ., Quế, T. N. ., Hòa, P. T. ., Mạnh, T. Q. ., Tuyển, N. T. ., Linh, H. P. ., & Khẩn, N. C. . (2024). QUALITY OF LIFE IN THALASSEMIA PATIENTS WITH IRON OVERLOAD AT THE NATIONAL INSTITUTE OF HEMATOLOGY AND BLOOD TRANSFUSION IN 2022. Vietnam Journal of Community Medicine, 64(CD 5 -Nghiên cứu khoa học). https://doi.org/10.52163/yhc.v64i4.711

QUALITY OF LIFE IN THALASSEMIA PATIENTS WITH IRON OVERLOAD AT THE NATIONAL INSTITUTE OF HEMATOLOGY AND BLOOD TRANSFUSION IN 2022

Nguyen Thi Dinh1, Tran Ngoc Que2, Pham Thi Hoa2, Tong Quang Manh2, Nguyen Thi Tuyen2, Hoang Phuong Linh2, Nguyen Cong Khan1
1 Thang Long University
2 National Institute of Hematology and Blood Transfusion

Main Article Content

Abstract

Objectives: Describe the quality of life of Thalassemia patients with iron overload at the National
Institute of Hematology and Blood Transfusion.
Methods: cross-sectional descriptive study was conducted on 388 patients treated at the National
Institute of Hematology and Blood Transfusion.
Results: PCS 38.9±18.4; MCS 40.2±19.7; HRQoL score 39.6±17.2. HRQoL in men (46.5±16,8)
higher than in women (37.5±15,7); urban (46.2±16.8) higher than in rural mountainous (39.2±17.2);
patients with moderate iron overload (42.7±17.4) was higher than the severe (38.2±19.2).
Conclusion: The patient’s quality of life was low with 39.4% poor and 60.6% moderate or higher.
Quality of life varies by age, gender, place of residence, iron overload status and duration of treatment.

Article Details

Keywords

Quality of life (QoL); SF-36; physical health, mental health.

References

[1] Weatherall DJ, The inherited diseases of
hemoglobin are an emerging global health burden.
Blood. 2010 Jun 3;115(22):4331–6. http://
dx.doi.org/10.1182/blood-2010-01-251348
PMID:20233970
[2] Nguyễn Thị Thu Hà, Bạch Quốc Khánh, Tổng
quan Thalassemia, thực trạng, nguy cơ và giải
pháp kiểm soát bệnh Thalassemia tại Việt Nam,
Tạp chí Y học Việt Nam, tập 502 – tháng 5, số
chuyên đề 2021.
[3] WHO, Rand Health Medical Outcomes Study:
36-Item Short Form Survey Scoring Instructions.
Access to https://www.rand.org/health-care/
surveys_tools/mos/36-item-short-form/scoring.
html, 2005
[4] Adam S, Quality of life outcomes in thalassemia
patients in Saudi Arabia: a cross-sectional study.
East Mediterr Health J, 25(12): pp.887–895
https://doi.org/10.26719/2019.25.12.887, 2019.
[5] Nguyễn Xuân Thái, Chất lượng cuộc sống của
bệnh nhân thalassemia điều trị tại Viện Huyết
học – Truyền máu Trung ương năm 2016 và một
số yếu tố liên quan, Luận văn thạc sỹ y tế công
cộng, Trường đại học Y tế công cộng, 2017.
[6] Mahdieh A, Majid M et al., Health-related
quality of life (HRQoL) in beta-thalassemia
major (β-TM) patients assessed by 36-item short
form health survey (SF-36): a meta-analysis.
Qual Life Res, 28(2), pp.321-334. https://doi.
org/10.1007/s11136-018-1986-1, 2019
[7] Mojtaba MSB, Elham MN, A Comparison of
Quality of Life between Adolescences with
Beta Thalassemia Major and their Healthy
Peers. International Journal of Pediatrics, 4(1),
pp.1195-1204, 2016.
[8] Maria DC, Antonis K et al., Quality of Life
in Patients with β-Thalassemia: Transfusion
Dependent Versus Non-Transfusion Dependent.
Blood, Volume 130, (S1), pp.751 – 753, 2017.
[9] Amid A, Saliba AN, Taher AT et al., Thalassaemia
in children: from quality of care to quality of life.
Arch Dis Child, 100(11), pp.1051–1057, 2015.